Met with dr Cambrin today. He is the other dr that will be doing Romans surgery. Apparently they will cut Romans skull off and dr sudiqqi with fix the shape of it with dissolvable plates and screws - on one table - while the rest of Romans body is laying on another table. Which means his brain will be exposed for a lot of the time. (not ok)
They told us today there is a 5% chance he could get a blood clot or have a stroke and die. So we need to make sure we can live with this decision if it does end up taking him from us. There is about a 90% chance he will need a blood transfusion.
The surgery will take 7-8 hours. What am I supposed to do during that time so I don't go crazy? It's not like I can read a book (no way I could concentrate) or eat (ha that's actually funny) or watch a show... All I can picture myself doing is sitting there shaking staring at the floor praying the nurse or dr doesn't call me before the 7 hours are up because that would mean something was wrong. But I do know without any doubt that my dad WILL be in that surgery room with my baby holding Romans hand and taking care of his grandson while I'm not able to do it. My dad was never able to hold his grand kids or chase them, tickle them, or play with them. And I would watch his eyes, especially when he looked at Roman. My dad ached to hold him. To play with him. To have a relationship with him. And it was impossible for him to have that in his condition. But now. My dad can hold them and keep them safe. I know he will stay with roman during surgery. And I know my dad will stay with him that night in nicu when they won't allow parents there. Somehow knowing that gives me a lot of peace going into this.
Romans tough! I mean, the kid birthed himself. He's got this.
Piper keeps telling him " Roman they are going to cut your head open and fix it with a noodle . Then you won't look silly anymore." .... Sounds about right.
8:57 p.m. - 2014-03-03
Recent entries:
too many times - 2016-03-24
Dance - 2015-11-05
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mountain dog - 2015-10-24
Roman turns 4 - 2015-10-17
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